Supporting patients living with a rare disease

Patients living with a rare condition face specific challenges: scarceness of information resources, uncertainty, in addition to psychological and social effects of disease management. Healthcare providers often lack tools and resources to support their patients while offering the best treatment and follow-up. To support patients suffering from a rare skin condition characterized by painful flares, our client, a leading global life science company, wanted to build an effective Patient Support Program (PSP) capable of meeting multiple needs: empowering patients, keeping them engaged with
their treatment and understanding their condition better.

A fully personalized program

The PSP built by Observia is holistic by nature, thanks to a combination of functionalities addressing all the patient’s needs. As the understanding of this rare condition was a top priority of our
client, we integrated a Patient Reported Outcome (PRO) feature, which allows patients to share and track their symptoms along their journey. This real-life data, collected in a secured and anonymized way, helps our client get a better understanding of the disease. Patients also have access to a reliable information center, helping them learn about their disease and how to best live with it. This content is personalized for each patient, to provide them with a unique experience, adapted to their needs. Such a level of personalization is achieved through Observia’s in-house tools:
d.tells™, a personalization engine fed by SPURTM, Observia’s behavioral diagnostic tool, that adapts the topics presented to the patient as well as the tone of the text, the channel to distribute
content, and the frequency of the messages; and Observia Patient Cloud™ (OPCTM), a health platform that brings together all services and offers an excellent user experience.

- Unique personalized user experience

- Gamified engagement challenges

- Patients' liberty in the choice of preferred functionalities